Wednesday, March 30, 2011

Quick update with more to come...

Just wanted to let everyone know at 8:10 a.m. Oliver Matthew Junebug Foster was brought in to the world. He weighed 2 pounds 8 ounces and was 13.75" long. We got to spend nearly 2 hours with him before he met Jesus in heaven. We will update with more details and pictures tonight or tomorrow. Thank you all for your continued support and prayers.

Rob, Allyson, and Oliver

Monday, March 28, 2011

Wednesday it is...

Well, our delivery day has been set. We will be going in early Wednesday morning so we can bring Junebug in to the world. We don't expect Junebug to be with us long, but we are going to love on this baby as much as possible and share every moment we can with him or her. Yes, after all of the testing we have had done, we still don't know if it's a boy or girl. I still say it's a girl like I have from the beginning and I think Allyson is finally starting to think I am right, but we'll see.

Junebug has taught us so much, touched so many people, and it's going to be extremely difficult to say our worldly goodbye, but we will see our baby again. Just as we have prayed and prayed that Junebug would be healthy and not have any physical ailments, our prayers will be answered when Junebug goes to heaven. It won't be a goodbye, but a "see you later". We are truly thankful and feel blessed to have this experience, but it doesn't make it any easier.

We have so many decisions to make in the next couple days and Allyson's body will be going through a lot. It will be not only emotionally challenging for her, but also physically. Please pray for her nerves when preparing for the procedure, and then also her recovery. While you are at it, if you could pray that we make the right decisions when encountered with all of the different questions presented in the next few days, it would be greatly appreciated. There are so many unknowns and we keep learning of more unknowns by the minute.

Junebug's Journey is far from over, and I'll update the blog as soon as I can on Wednesday or Thursday. We still believe a miracle can be done, as we are living a miracle now. God has blessed us in so many ways, and we sincerely thank everyone who is praying and has been.

Jesus said, “This sickness will not end in death. No, it is for God’s glory so that God’s Son may be glorified through it.” (John 11:4)

Talk to you soon,

Rob, Allyson, and Junebug

Saturday, March 26, 2011

Trials...

"Consider it pure joy, my brothers and sisters, whenever you face trials of many kinds, because you know that the testing of your faith produces perseverance. 4 Let perseverance finish its work so that you may be mature and complete, not lacking anything." --James 1:2-4


Rob and I went to Cincy Children's Hospital on Friday to have some tests run and find out if there is anything that can be done to help our Junebug. We were lucky enough to have my parents go too, just to be support and keep Rob company while I was being poked and prodded. We arrived at 9:30...they did an ultrasound (for 1 hour and a half), fetal MRI (for over an hour), fetal echocardiogram (for about 45 minutes), met with a genetics counselor, and had a huge team meeting with four doctors who are some of the finest in their specialities. Needless to say, by the time we got to the team meeting at 5:00, Rob and I were exhausted--physically, mentally, and emotionally. 


The doctors went over the MRI images and ultrasound findings. Some of which we already knew...some was new information to add to our list. 
We knew...

  • the umbilical cord is only a 2 vessel cord (instead of the normal 3 vessel cord)
  • Junebug's lungs are severely hypoplastic (meaning they are severely underdeveloped and small).
  • the left kidney is no longer functioning 
  • the right kidney is multicystic 
  • there is a bladder obstruction, resulting in severe oligohydroaminos (low to no amniotic fluid)
We didn't know...
  • the urine is mixing with the meconium (bowel) and calcifying 
  • there might be an imperforate anus/anal atresia (an anus that does not open to the outside of the body)
  • Junebug has a tethered spinal cord
  • Junebug has a hemivertebrae (a wedge-shaped vertebrae that could result in scoliosis)
  • Junebug's heart has a ventricular septal defect (a moderate hole in the wall that separates the right and left ventricles of the heart)
With all of that being said, Junebug has been diagnosed with VACTERL association. VACTERL association is a nonrandom association of birth defects that affects multiple organ systems. The term VACTERL is an acronym with each letter representing the first letter of one of the more common findings seen in affected children:

(V) = vertebral abnormalities
(A) = anal atresia
(C) = cardiac (heart) defects
(T) = tracheal anomalies including tracheoesophageal fistula
(E) = esophageal atresia
(R) = renal (kidney) and radial abnormalities
(L) = (other) limb abnormalities

To be diagnosed with this, at least three of the seven defects need to be present in an infant. The exact cause of VACTERL association is unknown. Most cases occur randomly, for no apparent reason (sporadic).

Unfortunately, there is nothing that can be done to help our Junebug. If JB would have only one or two of the defects/abnormalities, the doctors could probably tackle them through surgery or other medical solutions. But there is too much to try to deal with...so now we just wait to see when we can deliver. The outlook for Junebug is very grim. Even after I deliver, Junebug won't live long because of the underdevelopment of the lungs. 

So we are trying to spend as much time with Junebug as possible and make it as positive as we can. We know the journey is not over yet...and won't be for a while. God has used our little Junebug to touch and change so many people. 

Please continue to pray for us...God will continue to give us strength, wisdom, peace, and comfort. Please continue to pray for our families and friends...this news has been hard for them too! 

We are still praying and hoping for the best, but preparing for the worst.

Tuesday, March 22, 2011

Week 27!!

Jesus looked at them and said, “With man this is impossible, but not with God; all things are possible with God.” --Mark 10:27 (NIV)


Well, here we are...Week 27!! Can you believe it!?! God is good! He has sustained Junebug...almost a month past what we were expected! :) 


We went to the OB today for our scheduled check-up. She checked Junebug's heartbeat...perfect as usual! It was in the 140's. And JB has been moving lots today...usually the quieter it is, the more the baby moves. So, he/she doesn't move much when I'm at school...the kids are too loud. :)


We go to Cincinnati later this week to see what can be done to help Junebug. The day is packed with appointments! We will have an MRI, an ultrasound, meetings with specialists and a team of doctors. They will determine if the bladder shunt procedure will be beneficial and if so, when we will do it. If they think there is nothing they can do to help our Junebug, then we will come back home and deliver ASAP. Rob and I would like to spend as much time with Junebug alive as we can...so this is really our only option. We don't want to keep pushing the envelope, get too far to turn back, and then regret our decision. This is a hard decision for Rob and I to make. 


We know that God is in the miracle business. I mean, hello...we are living a miracle (or many)! It's a miracle we are pregnant in the first place. It's a miracle Junebug is still alive at 27 weeks. It's a miracle that Junebug's heartbeat is still so strong. It's a miracle that Junebug is moving so much. It's a miracle that God is using this little unborn baby to touch so many people! So we KNOW God does miracles...and we are still praying for yet another miracle (that Junebug is healthy when we deliver)! We have the faith...and we know He can move mountains! This is the mountain that we want/need moved! 


Please join us in praying for this specific miracle! Have the faith that God can/will do it! 


Also, our wonderful sister-in-law has arranged for a fast tomorrow for Junebug.  On her blog, Forever Family, she explains the reason behind fasting and what her prayers are during this time. Feel free to join her and others tomorrow. Pray for Junebug while you are fasting...pray that God will heal our baby and when we deliver, he/she will be healthy! God can do it! 


To our lil Junebug,
As Colossians 1:9-14 says, we haven't stop praying for you since we first heard about you. We, along with many other people, are praying for you and your well-being. We know that God is with you and us during this whole situation. Your journey is far from over...so keep hangin on. We will see you soon! We love you!
Momma and Daddy

Wednesday, March 16, 2011

Week 26 Appointment

We met with the neonatologist and specialist today and unfortunately, it did not go as we had hoped. The neonatologist started by saying that he had shown the MRI reports to a nephrologist and urologist and they were pessimistic about the chances of our baby being able to survive. It is clear that one kidney is not working and unsure if the other kidney is operating. Either way though, the lungs are not developing as needed and are considered hypoplastic.

With these two items going against our baby, they told us the outlook is very grim. We still have one thing we are going to do though and that is find out from a hospital in Cincinnati if a prenatal bladder shunt would be possible. They are one of few hospitals in the country which perform this procedure. There is no guarantee they will be able to do it, and if they do, there is still a large chance it won’t change Junebug’s condition. Unfortunately again, everything is up to us and we get to decide what happens next and when.

Needless to say, we are extremely saddened by the news we have received, but we are going to try and enjoy all of this time we have and have had with our baby. We have been blessed to have this opportunity to feel the baby move, give this baby love, and share our story with many people, which is more than some people get the opportunity to have. We’ve learned so much from Junebug and have seen a miracle first hand. Many people have given us support and prayers, for each one we are very appreciative. Junebug’s journey is not over by a long shot, but big decisions are going to be made very soon. We thank God for everything we’ve been given and the answers to our prayers. Please give your kids and loved ones an extra hug today, and let them know you love them. Thanks again for reading…

Friday, March 11, 2011

Results?

"Meanwhile, the moment we get tired in the waiting, God's Spirit is right alongside helping us along. If we don't know how or what to pray, it doesn't matter. He does our praying in and for us, making prayer out of our wordless sighs, our aching groans. He knows us far better than we know ourselves, knows our pregnant condition, and keeps us present before God. That's why we can be so sure that every detail in our lives of love for God is worked into something good." --Romans 8:26-28 (The Message)


We had our appointment today with the high-risk specialist to get our weekly ultrasound and discuss our fetal MRI results. During the ultrasound, Junebug was still head down, has a strong heartbeat (156 bpm), and active like normal. All looks the same...which we will take as a good thing. :)


Now for the results of the MRI...from what the doctors can tell Junebug has a multicystic left kidney, which means it probably isn't working. The right kidney, right ureter (tube connecting the kidney to the bladder), and the bladder are all enlarged, due to (what they believe) is urine back-up. They think there is either a blockage in the bladder or the opening to allow the urine out never formed correctly; therefore, we don't have amniotic fluid. The NICU doctor that we met with last week is going to take the MRI images to a nephrologist (kidney doctor) for infants/kids to get his opinion on what's going on and what Junebug's outlook is. We have a meeting with the NICU doctor on Thursday to find out more. 


Please continue to pray for Junebug! We are now praying that God will allow this blockage to be resolved, either by His hand or through the doctors. We are continuing to pray that Junebug doesn't compress its umbilical cord. Please pray for peace for Rob and I as we wait another week to find out more information and make decisions for our Junebug. (But please don't pray for patience, right Mom? God is definitely teaching us patience...we don't need to learn more.) And continue to pray for our families...things are still stressful and they worry about us and JB. 


On a side note, Rob's grandma (Mamaw Liz) passed away this morning from her battle with cancer. So pray for his mom's family during this time of loss. As cautiously optimistic as we are being, we know that if Junebug doesn't make it here on Earth, at least he/she will have great-mamaws and great-papaws to play with in Heaven. We will miss Mamaw Liz! 

Wednesday, March 9, 2011

Week 25

Wow! We made it to Week 25 (and a half)! God is working in Junebug! :) Still kicking and moving all around! Pressing on my sciatic nerve...OUCH...but I will take this pain from my Junebug!

We just got home from the fetal MRI at Riley. The tech said he was able to get some good images. He will send them to the doctor and we will find out the results on Friday morning at our appointment with the high-risk specialist. He did scroll through them with us, and we were able to see the baby's brain and abdominal cavity/organs. In one face image, we could see the baby's eyes really well...like Junebug was looking at us! Amazing!

We will keep you updated as we learn what our next steps are going to be for our little Junebug. Please keep praying! God is hearing your prayers and we are feeling them! Love you guys!

Thursday, March 3, 2011

24 1/2 Weeks Part 2

Well we went to our appointments and as we had feared, we don’t have a clear cut answer to what we have ahead of us. The ultrasound looked like all the others we had seen for the most part. No amniotic fluid, still no kidney action that can be seen, and no new answers. A positive though is that the measurements were spot on for 24 weeks and the baby weighs an estimated 1.8 pounds, right at the 50th percentile. Also, the heartbeat is a strong 146 bpm and the baby had the hiccups again.

Next we went to our meeting with the neonatologist and the specialist. After many minutes of discussing statistics on delivering at 24 weeks, we came to the conclusion it wasn’t going to happen right now because the baby would not survive. A best case scenario normal baby has anywhere from a 40% to 70% chance, but a baby in our situation probably has less than a 10% chance. As we continued to discuss our situation we learned each day the baby makes it is vital to the development of the baby. The main points of concern were of course the amniotic fluid, the lungs, the kidneys, and the unexplained mass below the kidneys. To try something different in figuring out the whole disconnect with the kidneys and the unexplained mass, they asked if we would consider having a fetal MRI to try and see what is going on. They usually do this for babies when looking at brain or head development, but they thought an MRI could help discover some of the other issues with the kidneys. We agreed, so we have an MRI set up for Wednesday afternoon. Hopefully the MRI will shed some light on the subject and help us out.

With all of this being said, this is where some hard news hit us. We were now told that they can’t tell us when to deliver or begin monitoring the baby, but that it is completely 100% our decision. Suddenly we were given all of the responsibility and were told again there is no right or wrong answer. Without knowing what to do at this time, we have decided first to get the MRI and see if we get any new information. If there is new information, hopefully the doctor’s can give us some better direction. Still yet, anything can happen to the baby any time and any day, so the next goal is to make it Wednesday for the MRI. The constant fear is the chance of cord compression with the baby growing and limited space.

We have some big and tough decisions ahead of us. We will be praying for wisdom to make the right decisions, and also strength to make it through each day. The stress of the situation definitely hits us from time to time, but the support and prayers from everyone has helped us immensely. Please continue to pray for our Junebug and our families as the near future is not going to get any easier.

I know some people who may be reading our blog aren’t religious people, but I’m going to throw out some more religion right now. We truly do thank God for this baby and giving us strength to make it as far as we have. Without Him, Allyson and I would not be handling this as well as we have and we would not have all of the awesome support of family and friends. Our situation has really put in perspective for me the difficulty it must have been for God to send his only son Jesus to die for all of our sins. I would do anything and even die for Junebug, but I wouldn’t want Junebug to give its life for me. I want Junebug to know life outside of the womb and have the chance to live a long life.

The love of a child is different from anything else in the world and I would not give this experience up, even with it being a challenge. So whenever you are reading this, if you have kids, give them a hug or give them a call and let them know how special they are and that you love them. Each life is a miracle and a true blessing. If you don’t have kids, hug a spouse or loved one because they are someone’s child and a miracle too. Remember, it is because of the Son we are all blessed to have the lives we do.

Thanks and God Bless,
Rob

24 1/2 Weeks Part 1

I thought I would post my first blog entry today before our appointments since it is a big day for our Junebug. It kind of feels like Christmas because I couldn't sleep and we really don't know what we are going to get out of today. All of this anticipation of what the neonatologist, specialist, and OB will be saying. We could get bad news again, but we could get good news, it's out of our hands and we'll try to make the best out of whatever situation we're given.

No matter what, God has been good to us and brought our little miracle further than the doctors could have imagined. Here we sit at 24 1/2 weeks and the specialist had told us at one time it would be doubtful for Junebug to make it to 23 weeks because of cord compression. Our miracle keeps going on somehow and as the specialist said last week, "not to our own understanding, but only unto His". The baby is still growing, the heartbeat was still strong last week, and Junebug has stayed away from the cord enough not to crush it. We still need the kidneys to start working because as of right now without any amniotic fluid, it still appears they aren't working.

Hopefully today's ultrasound will show some good changes and the baby's lungs will develop more after Allyson receives shots. I'm hoping the shots don't hurt too badly for Allyson since she has to get them two days in a row. At the same time, I hope they work! It's hard to believe we are at this point. I can't tell you enough how all the prayers and support have helped us and without them, it definitely would be harder. Junebug's journey isn't over yet, but merely reaching a milestone today. We'll update the blog as soon as we can and please keep the prayers coming for our baby and our families.

Thanks,

Rob, Allyson, and Junebug too!